
Sydney Olympic Park Aquatic Centre, Saturday 28 March 2009


Tamworth boy Charlie was only two and a half when he was diagnosed with the eye condition Rod-Cone Dystrophy. At the time, his family didn’t know where to turn.
Thankfully, his mum Michelle saw a community service announcement about the Royal Institute for Deaf and Blind Children (RIDBC) on television and made contact. “It’s one of the best decisions I ever made,” she said.
“ It was a very scary time. The assistance we have received from RIDBC has made the world of difference. ”
“It was a very scary time. The assistance we have received from RIDBC has made the world of difference,” Michelle said.
At the moment Charlie can only see objects within 10cm of his eyes. Unfortunately, even his close vision will continue to diminish. Charlie will be left with no useable sight. To read, Charlie now uses a special magnifier that enlarges the print. In the future, he will almost certainly need braille – something he has already begun learning.
Helping Charlie through this process is the RIDBC Teleschool. This is a new service where RIDBC’s specialist teachers use videoconference technology to reach children in regional and remote areas. RIDBC Teleschool sessions complement the assistance that Charlie receives through his preschool and a local specialist teacher.
“Charlie has progressed from a child who was reluctant to a child who is growing in confidence with every lesson,” said Charlie’s RIDBC Teacher/Consultant, Tricia d’Apice.
Michelle participates in every lesson. She too has seen the positive change in Charlie.
“Charlie’s confidence and his determination to do things are amazing,” Michelle said.
“He attempts most things now and his interaction with other children has improved dramatically,” she said.
Michelle and husband Julian also have a key message for all parents. “If you know there is a problem, get help as soon as you can. We are so grateful that RIDBC has been there for us,” Michelle said.
You can help support programs like the RIDBC Teleschool by making a donation.
If you would like to know more about the Royal Institute for Deaf and Blind Children, its services, students or ways that you can help, visit the RIDBC website.

